tag:blogger.com,1999:blog-4889592646404303255.post8115175674209876679..comments2023-10-08T07:50:35.783-04:00Comments on Fingolimod and Me: UnremarkableUnknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4889592646404303255.post-57634048766957876062008-07-01T09:37:00.000-04:002008-07-01T09:37:00.000-04:00Yeah! That must have been an enormous relief! You ...Yeah! That must have been an enormous relief! You have been in my thought and prayers, and will continue to be so! DeborahDeborahhttps://www.blogger.com/profile/16211723163342252933noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-39960702954492408262008-06-30T14:23:00.000-04:002008-06-30T14:23:00.000-04:00Marvelous news!Marvelous news!Suldoghttps://www.blogger.com/profile/07778845367184916684noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-58770376659492417202008-06-29T11:21:00.000-04:002008-06-29T11:21:00.000-04:00mdmhvonpa: so much easier to think of you as Mark....mdmhvonpa: so much easier to think of you as Mark. That screen name is hard to pronounce. LOL<BR/><BR/>Wahm922, you are a sweetheart! <3<BR/><BR/>Merelyme: You will LOVE this stuff! Yes, I hope they come up with a catchier name once it's approved but they could call it Dog Poo and I would still ingest it for how it has tamed my MS. I've read some patients from Phase II are STILL relapse free after 3 years on it.<BR/><BR/>The skin cancer thing is up in the air about whether the couple of cases from the earlier trial (with a higher 5mg dosage) are actually attributable to the Fingolimod, but they make us see a dermatologist for an exam just to be on the safe side.<BR/><BR/>A lot of the things that occurred at 5mg have not happened with the 1.25mg or .5mg doses, so I'm hoping that it was because you CAN get too much of a good thing. :-)Jeri Burtchell (TickledPink)https://www.blogger.com/profile/05961503858715547705noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-24548771762207114042008-06-29T10:43:00.000-04:002008-06-29T10:43:00.000-04:00wow...i had a cyst like this too. i was scared to...wow...i had a cyst like this too. i was scared to death before i was told it went away. i am adding you to my links and i will probably be reading each and every one of your posts. my neuro has brought up the topic of using fingolimod (what a weird word this is) and so i will research it. they say it should be FDA approved soon. i am not on any meds right now so the thought of an oral med sits a lot better with me...along with the fact that i read it has up to 70 percent efficacy rates. the only bad thing i heard was that it may cause skin cancer? is this true?<BR/><BR/>anyways...will be reading you a lot in the coming months.Synchronicityhttps://www.blogger.com/profile/07631238942909923311noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-32823728221492071832008-06-28T22:32:00.000-04:002008-06-28T22:32:00.000-04:00Glad everything worked out in the end. You know y...Glad everything worked out in the end. You know you are in my thoughts daily!Daniellehttps://www.blogger.com/profile/09351926680528670968noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-71705489689408875372008-06-27T15:29:00.000-04:002008-06-27T15:29:00.000-04:00Seeing that my first name is Mark ... I would cert...Seeing that my first name is Mark ... I would certainly be taken aback by being described as unreMARKable!mdmhvonpahttps://www.blogger.com/profile/05319386081400881905noreply@blogger.com