tag:blogger.com,1999:blog-4889592646404303255.post3707478911524066078..comments2023-10-08T07:50:35.783-04:00Comments on Fingolimod and Me: Novartis / Fingolimod (FTY720) in the news again...Unknownnoreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4889592646404303255.post-76331190784757169182009-02-19T15:48:00.000-05:002009-02-19T15:48:00.000-05:00Fascinating news. Of course, the best news - the f...Fascinating news. Of course, the best news - the fantastic news - is that so many people have a chance to be helped.Suldoghttps://www.blogger.com/profile/07778845367184916684noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-68916601705927188822009-02-14T11:15:00.000-05:002009-02-14T11:15:00.000-05:00After more than ten years on Avonex, with side eff...After more than ten years on Avonex, with side effects getting progressively worse in years 8 and 9, I was sick and tired of the interferons altogether. I've been hoping for a pill for several years and like others also jumped in to the cage to take my place as a lab rat (beginning next month).<BR/><BR/>Moles - both benign and pre-cancerous - have been a part of my life forever. Figolimod possibly causing more is just not a problem for me, personally. Finding a dermatologist and getting at least a yearly mole check is as important as paps and mammograms, IMO.<BR/><BR/>I only wish I had the funds to buy some stock in Novartis...Anne Phttps://www.blogger.com/profile/07630895464447581306noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-61117005606304145852009-02-13T20:29:00.000-05:002009-02-13T20:29:00.000-05:00Yeah there will be some wait and see's but I will ...Yeah there will be some wait and see's but I will tell you what when I found out there was research for a pill I scrambled to get in the trial.<BR/><BR/>After 1 yr of avonex and 6 months of betaseron I was so done with shots. I suspect that those who are used to the shots won't switch right away but new folks will be like me and racing for pills. Also those that are not tolerating shots well will switch. Might also pick up some folks that are not on anything because of a shot phobia.TaoWarriorhttps://www.blogger.com/profile/02005684714989017787noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-73327517299611519092009-02-13T10:18:00.000-05:002009-02-13T10:18:00.000-05:00I totally agree, Lisa. Had I not decided to enter ...I totally agree, Lisa. Had I not decided to enter the trial, I would probably wait a few years and keep doing tried and true injections.<BR/><BR/>Especially with the 2 deaths from herpes related viruses and the 7 cases of skin cancer.<BR/><BR/>Who knows what the longer-term effects might be??<BR/><BR/>I just happened to have decided to gamble with my life and risk everything to lavish in what turned out (so far) to be great benefits for me... but that doesn't mean I'm not cooking up a big ganglioma or something as I write this.<BR/><BR/>(OMG I hope that doesn't prove to be prophetic!! KNOCK WOOD! KNOCK WOOD!! A hypochondriac knows better than to every talk like that. What was I thinking??)Jeri Burtchell (TickledPink)https://www.blogger.com/profile/05961503858715547705noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-67782700668955172492009-02-13T10:04:00.000-05:002009-02-13T10:04:00.000-05:00Very interesting article. However, it got a bit t...Very interesting article. However, it got a bit tedious with all of the "so-called"s. <BR/><BR/>I wonder just how many patients really will jump at the switch immediately or take a wait-and-see approach.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-36697237038498252452009-02-13T08:28:00.000-05:002009-02-13T08:28:00.000-05:00I had a talk with my mom a year ago when the final...I had a talk with my mom a year ago when the final phase II results were released and tried to convince her it was going to be the best thing since sliced bread and that she should buy stock.<BR/><BR/>As for me, I only had about enough dough to be able to buy 2 shares so I didn't bother. LOLJeri Burtchell (TickledPink)https://www.blogger.com/profile/05961503858715547705noreply@blogger.comtag:blogger.com,1999:blog-4889592646404303255.post-63991595129997093782009-02-13T08:11:00.000-05:002009-02-13T08:11:00.000-05:00So do we buy stock in Merck or Novartis?I bet the ...So do we buy stock in Merck or Novartis?<BR/><BR/>I bet the anylist who said 1.3 million for the first pill doesn't have MS. If the market is 6 millon curently I would say more like 3 million to the first pill.<BR/><BR/>Ah heck they already got me I might as well get the stock in Novartis.TaoWarriorhttps://www.blogger.com/profile/02005684714989017787noreply@blogger.com